Dan's thread

I get the impression that they are overwhelmed! Enjoying listening to the music, having a few cold ones :grinning_face_with_smiling_eyes:

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Glad to hear you’re still going strong. I’ve had a cough for almost a month, lucky tested negative for the flu and covid. No immune system is a side effect of chemo and immunotherapy and may never recover. Got my next immunotherapy next week.

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This is all great to hear, Dan! Well done. Really really pleased for you.

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Solar panel system went ahead today early! Said it would be a nice simple installation. We will see what happens! Lead time, no idea!

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I have had 2 colds this year. This is number 2. Have done my best to avoid people who are ill! Not too bad in 6 months. Good luck with treatments Pete!

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You are such an inspiration Dan. I am in awe. Your appreciation of life and your humour are beacons of light. 52 more years sounds like a terrific plan. I am in :wink: for the challenge.

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Another side effect of Chemo I discovered is that it sometimes resets your immune system for things like hayfever, which all but disappeared for several years after my chemo. Now it is very mild, so it is a definite plus. On balance, I would have preferred not to have needed the chemo but to get one beneficial long-lasting side effect, “is not to be sneezed at” as my dad used to say, which seems an apt phrase as my summers have fewer sneezes.

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It’s certainly reset mine, before my cancer I was never sick often injured but never sick. I’d get the flu and whinge if it lasted more than 2 days, I always bounced back quickly. I use to make fun of friends because of all their tablets they took. Guess who’s laughing now.

I’ve now had all the vaccines I can (I’m not allowed any live cultures) after my stem cell transplant but still get whatever’s going around. I’ve learnt to avoid strangers.

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I can only admire your courage and postive attitude Dan. How you have managed to cope with it all physically and mentally I really can’t imagine. And it sounds as if none of this has really impacted on your appetite for very hard work! Amazing. People like you are an inspiration to us all. Very best of luck for the future, and may it be a long one.

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My fatigue in many ways is probably the worst long term effect for me. When I first suffered the fatigue post treatment, I was told it rarely lasts more than 2 years. Breaking my collarbone twice and needing surgery within this two years, and in an area that was irradiated probably didn’t help me get over the fatigue; nor has the ongoing pain around my shoulder and neck. This Xmas it will be 12 years since my treatment ended. I do get frustrated by the fatigue sometimes and the pain can be exhausting but hopefully my recent admission to myself that I need help with this has led to a referral to a shoulder specialist.

More importantly, I hold on to knowing that I am still here, and I am mostly managing the fatigue better now, so feel extremely fortunate, even with experiencing rare long term side effects. There are lots of good bits in my life to notice and mostly take my attention away from the less good bits.

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My situation is complicated by low cortisol levels caused by Immunotherapy Nivomulab. It is a permanent condition caused by the drug so I take hydrocortsione as my adrenaline gland no longer works. What this means is I can go into an adrenal crisis. Effectively I have adrenal insufficiency and have to take 20mg of hydrocortisone per day.

If I am ill I have to double the dose which causes headaches and doesn’t enable my immunity to work as well. So getting a cold turns into a bigger problem. It also affects my hernia with all the coughing increasing pain.

It’s a problem, but things could have been worse! I am just getting on with it!

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Thanks @70sPete. I appreciate your comments very much and your support! I have become and I guess I always was a Warrior!

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Thanks @Emrah. I do laugh about life but I never give up. I am here to stay! No matter what obstacles I come across I will never ever give up!

Thanks everyone for your continued support on Dan’s Thread. I value your support and send my love and best wishes to you all.

Best,

Dan
:flexed_biceps:

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I admire your attitude Dan. Your mental strength is amazing. I do n’t know how you do it, but keep it up!

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It’s partly because of people like you who offer support and human spirit that helps!

You guys on here keep me going!

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Exactly,

All the best

Ian

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Its so lovely all the support and encouragement for you Dan and for other people in tough times.I mainly post on the What are you listening to who might be interested ? .And last year I had to have my cat put to sleep after a long drawn out illness.I posted about it there and the amount of posters who replied was so heartwarming .As I felt emotionally raw.Its much worse at the moment for Garry @Cmax who lost his wife a couple of weeks ago.But he has had recieved sympathy and advice.So what I mean its a lovely friendly community and @Richard.Dane does a brilliant job keeping it that way.

We are always here for you Dan you know that and I admire your positivity and determination.And what you have been through could be any of us.

Wishing you a good week and enjoy your terrific system in the evening.

Warm regards Ian.

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Hi Dan, sorry I haven’t been keeping up to date with things over the past couple of weeks, As Ian @Tabbycat mentions, I lost my partner 3 weeks ago today, you can guess the rest.

It’s good to keep seeing your positive attitude Dan, and your mental strength is fantastic.

As you mention in a previous post, the guys & girls on here are a truly an amazing butch of people.
This is a great forum, long may it continue.

Gary

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Hi Gary,

I am so sorry to hear just now of your loss. Sending you all my love and best wishes. The forum is a great source of support.

Wishing you the very best at a difficult time,

Dan

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Hi Dan,

Thank you for your kind words of support, much appreciated.

Gary

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