I’m doing alright. Seeing consultant for discussion about lung surgery on monday. Spending time with my youngest 4 year old son this weekend. We have been playing Scakextric cars and remote control cars outside.
He’s not so into music just yet. Just chilling out today with the two of us.
Bless ya mate. What a great way to spend an afternoon. My 17 old son is doing he all he can to get a car as he’s just started learning to drive! So it all begins!
He’s doing great…albeit no car at mo. He wasn’t fussed about learning to drive so we didn’t rush into getting a “run around”. Then he says four weeks ago he wanted to learn…caught us on the hop.
We’re in the middle of sorting something for him…but…Lordy…insurance…ching ching!!
I was in there 5 minutes. They haven’t got scan results. They are trying to expediate things and move lung resection op to be done in next 3 to 4 weeks. I will continue to chase up my oncology department as things have taken too much time.
The NHS in UK is I would say is slow and could be called broken. I should have been operated on already.
Given that my lesions have likely to have increased in size further. And my fear is things could have spread.
Gee that’s disappointing hope they sort it out quickly.
People here complain about our Medicare but I think they’ve been fantastic. Apart from the month and a bit wait to see my specialist initially everything been like clockwork.
Very important. Be visible to them and don’t stop contacting them. Sometimes in life this is needed. I’ve lost a very empathetic auntie last year who was very understanding with the hospital but the result was that she was forgotten and she did not make it. Having said that, one other aunt and a colleague organist are still with us and I think it was besides luck that they were very engaged and open about it.
I am really sad to be saying this as an NHS consultant but you just have to make a nuisance of yourself. Keep phoning the consultant’s secretary or, even more effective, send a complaint in to the PALS department at your hospital
Sorry to hear this Dan. In addition to crispyduck’s suggestion, if you have a named Macmillan Nurse also contact them, they often know the best person to talk to about sorting out delays.
It only seemed like yesterday you were describing the chemo so I was surprised it actually ended in May.
When were your latest scans done, I got the impression the favourable ones were post-chemo raising the possibility of surgery? Are the unreported ones more recent?
Were these scans done at the specialist regional cancer centre or maybe at a district general hospital?
Either way I’d write a polite letter (or email) of complaint to the relevant site as it’s a problem with the system not individuals or teams. Raising the priority by raising a concern should not be necessary but it should help expedite things as much if not more than communications from the oncologist.
Apologies for some of the questions above, not trying to stick my nose in, just that there will be channels to raise concerns if you wanted to informally or formally, though naturally you might not want to do this at all.
Hopefully the results needed will be available quite soon.